#MEAction

#MEAction Network UK

MEActNetUK

#MEAction UK has written a letter of complaint to Good Morning Britain @GMB We are deeply concerned by recent statements by Dr Hilary Jones on GMByesterday in his interviewwith Kate

Brad Hoffman

brad_with_a_mal

The hidden COVID tidal wave you dont see on the graphsEvery day I come across one graph or another showing the numbers of new cases, rolling cases, hospitalizations, and/or deaths

#MEAction Network UK

MEActNetUK

Excellent to see ME highlighted on the front page of @guardian today, alongside other disabled people left off vaccine priority lists. People who have been house and bedbound for years

#MEAction Network

MEActNet

Intensely in-depth article @moisesvm!"Many people - long-haulers, those with ME/CFS, scientists & doctors - worry about the long-term consequences of tens of millions of people infected with a virus that,

Dr Ben Marsh 💙

bendymarsh

ADVICE FOR #LongCovid There IS good advice available to help with #LongCovid #postviral #ME fatigue symptomsThere r also Snake oil salesman & opportunists looking to make money from your ill

Jan Choutka

jan_choutka

Holger is a Swedish patient with the severe form of ME/CFS. He now faces the possibility of being forced to a psychiatric ward against his will. Please sign and share

Emily Bazalgette

EmRoseBaz

Journalists! Here's 5 #LongCovid x #MECFS stories that you actually need to write (in contrast to this rubbish in @ObserverUK). Long Covid requires profound change to our healthcare & welfare

It'sME(Jaime)

exceedhergrasp1

My colleague at #MEAction, @TillmanAdriane just quoted the new @edyong209 article: "The physical toll of long COVID almost always comes with an equally debilitating comorbidity of disbelief..." (1/7) #longhaulers #longCOVID

Charles Buttkowski

LUBOttom

This is such fantastic news. Ppl w/ M.E. have been TORTURED & irrevocably harmed by this "treatment". I was once in a rehab unit that used this. My aunt took

Brian Vastag

brianvastag

This year I managed to write one article, with @rndNumGen, who conceived it & did much of the research. It was a warning, in May, that #covid19 would lead to

Hannah Davis 🦈

ahandvanish

Yay our #LongCovid paper is online!!!https://www.medrxiv.org/content/10.1101/2020.12.24.20248802v2While we had a few thousand more fill in the survey, this paper focuses on 3,762 #longhaulers (sick >28 days) who got sick between Dec-May

Jennifer Brea🦒

jenbrea

We should take some of the most replicated findings in #MECFS and study them in #longCOVID patients. Some of these findings, if also present in #longCOVID, *could* potentially imply avenues

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