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This is such fantastic news. Ppl w/ M.E. have been TORTURED & irrevocably harmed by this "treatment". I was once in a rehab unit that used this. My aunt took me out for a trip & I asked if we could just go to hers as I felt so sick. I panicked & locked... https://www.theguardian.com/society/2020/nov/10/fatigue-syndrome-exercise-therapy-loses-nice-recommendation
...myself in her bathroom, in tears refusing to leave. They got my mum to come over & I cried through the door, telling her what they were doing to me. She coaxed me out of the bathroom, took me to the unit, shouted at them & collected my bags.
They'd actually been trying to...
They'd actually been trying to...
Make me go from a 5yd walk to climbing stairs and they actively bullied me as I cried from pain. It was clear the nurses felt it was a psychological condition you could bully people into recovery from. It's an evil bloody treatment & I took a long, long time to recover from it
The evidence, Dr Miller, is thousands of people telling you it makes their symptoms worse. FFS, the delegitimising of patient experiences is truly foul. Doctors, don't do this.
Dr Alistair Miller should read this. This destroys people's lives. It kills. GET, CBT, and NLP are NOT cures for M.E. They're a failure of the medical profession to engage with the research, they're a failure of funding, they're a failure of ignorance https://www.meaction.net/2019/01/23/the-effects-of-graded-exercise-therapy-and-positive-thinking-on-a-young-girl-with-me/
I'm particularly appalled Dr Miller put Nice's changes down to political pressure. This isn't political, and if it was, Drs are the ones w/ the power, not the patients/ patient groups (1/2 of whom listen more to the likes of Dr Miller than the 1000s of patients speaking up).
I would like to just state that, whilst I don't think ME is psychogenic, psychogenic illnesses are still very much real and the pain & other impacts are real. I had psychogenic abdominal migraines in a period of acute stress & they hurt more than my IBS & GORD combined.
I don't want anyone to think that our fight against ME being treated as psychogenic invalidates anyone w/ psychogenic disorders. You're valid and matter.
If you're newly dx'd w ME, such as post-covid, be prepared for ppl to try to talk you into GET, NLP/ lightning process & for aloe vera MLMs to grab at you like vultures. Turn it all down. It will make you worse or bankrupt you. The MLMs like to claim they can cure cancer&AIDs too
I have had to cut out family & friends for trying to pressure sell aloe vera to me for a multitude of my conditions. If they get into MLMs like it, your illness becomes seen as money signs. Be wary.
AND if you're anti-woo, then be brave as you can & make it clear. For incurable illnesses, everyone thinks they can heal you. I've even cut my hand on "healing crystals" family hid under my pillow before! 
