Journalists! Here's 5 #LongCovid x #MECFS stories that you actually need to write (in contrast to this rubbish in @ObserverUK). Long Covid requires profound change to our healthcare & welfare systems. We're nowhere near ready & the scandal of MECFS care is partly why. Thread 👇🏻 https://twitter.com/eleanormorgan/status/1333013162929557505
1. BIPOC's experiences of navigating our healthcare system with #LongCovid MECFS is under-diagnosed in BIPOC due to systemic racism, is this happening with #LongCovid too? If so, what is the impact, given the disproportionate impact of Covid-19 on BIPOC? https://www.meaction.net/2020/05/21/when-poc-cant-get-a-diagnosis-go-unseen/
When POC Can't Get a Diagnosis, Go Unseen - #MEAction Network

Discussion about how ME and COVID-19 are affecting communities of color in the U.S., and the health disparities that must be addressed.

https://www.meaction.net/2020/05/21/when-poc-cant-get-a-diagnosis-go-unseen/
2. 20 years ago, a network of clinics were set up to treat MECFS. Now, hardly any are functioning (I call them "zombie clinics" 👇🏻). Why did this happen? How do we stop it happening with the 40 new Long Covid clinics?

https://twitter.com/EmRoseBaz/status/1197101720993697792

https://www.england.nhs.uk/2020/11/nhs-launches-40-long-covid-clinics-to-tackle-persistent-symptoms/
3. There's 500K people w/ Long Covid in UK. Is the govt preparing healthcare & welfare systems for 1000s of people with new disabilities & chronic illness, incl. MECFS? If not, why not? It's *incredibly* predictable. Here I am in March 2020, predicting it https://twitter.com/EmRoseBaz/status/1243186180377718784
4. Post viral sequelae are common (like #MECFS). Why has no govt funded research? What treatments might we have for #LongCovid if we had taken #MECFS seriously? The likes of PolyBio are welcome, but we need proper govt funded research #LongCovid #MECFS https://polybio.org/ 
5. Why were a small group of UK psychologists able to doctor their (DWP-funded) trial results & stall MECFS research for a decade? Why did it take @NICEComms so long to issue new guidelines, when WHO and US' NIH changed their guidelines years much earlier? https://meassociation.org.uk/2018/02/government-funded-me-cfs-trial-one-of-greatest-medical-scandals-of-21st-century-20-february-2018/
Government-funded ME/CFS trial 'one of greatest medical scandals

A controversial medical trial part-funded by the Department of Work of Pensions will emerge as "one of the greatest medical scandals of the 21st century" an MP today claimed.

https://meassociation.org.uk/2018/02/government-funded-me-cfs-trial-one-of-greatest-medical-scandals-of-21st-century-20-february-2018/
Ok, story number 6 that needs covering 👇 https://twitter.com/EmRoseBaz/status/1344659450481799172
You can follow @EmRoseBaz.
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