#Dysautonomia

Heather Hogan

theheatherhogan

Just an update on my ongoing #LongCovid journey for those following along and looking for help/seeking answers. I got Covid at the end of March, couldn’t get tested here in

Allison Floyd

AllisonRFloyd

I makes me very angry that people are getting POTS after contracting COVID. Why did it take a global pandemic to shine some light on something hundreds of thousands of

Alison Sbrana

AlisonSbrana

Happening now. Key points:- #LongCovid can happen regardless of acute infection severity- Symptoms: respiratory, fatigue, sleep difficulty, neurological sx, depression, anxiety"There's a lot we still do not understand, and empathy

Julie Rehmeyer

julierehmeyer

One of the biggest challenges #mecfs has faced is that there isn't a tidy story to organize one's thoughts around. "Fatigue" has been offered up as the story, but it's

aure

maureviv

Regarding cardiac involvement in COVID, we may not witness cardiogenic shocks (only seldom) and sure, many patients don't require high-dose vasoactives even under deep sedationThen there was that bogus athlete

Morgan “Cat Father”

hisnameistama

Not sure if this belongs in #neisvoid but something that I didn’t realize until recently is that I’ve had diagnosed chronic illnesses for most of my life but just refused

myelasticheart

myelasticheart_

When compiling a list of every state's vaccine plan, i found that in many states people with preexisting conditions are ONLY prioritized if they have 1 of 12 conditions @CDCgov

TheDisabilityEnthusiast

twitchyspoonie

Let me tell you about the main symptom of the chronic illness covid often gives people. It's called Post-Exertional Neuroimmune Exhaustion/Post-Exertional Malaise and it's like quicksand. It means the more

Barbara Melville-Jóhannesson

keyeri

I’ve rustled up table of #LongCovid symptomologies, using my years of no medical expertise whatsoever. It's not as accessible as I'd like – I will update and bedazzle after feedback.

The Autisticats

autisticats

Something I learned yesterday is that autistic children are 2x more likely than the general population to experience chronic pain. The article I read is right here, for anyone who

@WeAreDisabled: @cheesepickles

WeAreDisabled

Gonna make a bit of a detour here and talk about PODCASTS and how they're both amazing and awful for disabled people i'll start with the awful: so.

Alison Sbrana

AlisonSbrana

Watching day 2 of @NIAIDNews #LongCovid workshop. Right now: breakout sessions. I'm watching the neuro breakout session, led by Dr. Komaroff. @ahandvanish is there representing #LongCovid patients with @itsbodypolitic. Tune

Lucia Lorenzi

empathywarrior

I am lying here thinking about how the day I chose to leave academia behind for good because I couldn’t compromise my ethics or my health was the same day

Sparrow/Liz (semi-hiatus)

UntoNuggan

[Exercise]I don't know who needs to hear this, but if you have a chronic illness like fibromyalgia and your physical therapy exercises make you hurt for days afterwards, and people

pathdoc3

pathdoc3

#COVID19 - repeated trends:-Endothelium-Vitamin D deficiency-Lymphopenia-Neutrophil Extracellular Traps #NETs -Autoantibodies / Antiphospholipid Antibodies #aPLs -Lupus-like autoimmune response -Immunothrombosis - blood clots-#ME/CFS / Dysa

Ed Yong

edyong209

Here’s my new story about long-haulers who’ve had COVID-19 for months. I first wrote about them in early June, and much has changed since then. Notably, many are still sick.

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