Read on Twitter
Happening now.
Key points:
- #LongCovid can happen regardless of acute infection severity
- Symptoms: respiratory, fatigue, sleep difficulty, neurological sx, depression, anxiety
"There's a lot we still do not understand, and empathy toward #LongCovid patients is fundamental" https://twitter.com/AlisonSbrana/status/1352119864379363328
Key points:
- #LongCovid can happen regardless of acute infection severity
- Symptoms: respiratory, fatigue, sleep difficulty, neurological sx, depression, anxiety
"There's a lot we still do not understand, and empathy toward #LongCovid patients is fundamental" https://twitter.com/AlisonSbrana/status/1352119864379363328
See all slides here: https://emergency.cdc.gov/coca/ppt/2021/012821_slide.pdf
More than 1/4 of patients developed new neurological symptoms after acute COVID-19 illness.
More than 1/4 of patients developed new neurological symptoms after acute COVID-19 illness.
Model of interdisciplinary #LongCovid clinic –– this is RECOVER Yale.
What Yale interdisciplinary #LongCovid clinic have learned and what they would improve:
(Note –– they were surprised how common neurocognitive sequelae are. We've been talking about this a lot at @itsbodypolitic considering what @patientled research team has found.)
(Note –– they were surprised how common neurocognitive sequelae are. We've been talking about this a lot at @itsbodypolitic considering what @patientled research team has found.)
Talking about Mt. Sinai #LongCovid interdisciplinary center.
Note third bullet:
They expected to see hospitalized patients with moderate-severed COVID
Reality? Majority of patients *not hospitalized* with wide range of sx. Neurology, pulmonology, and cardiology top referrals.
Note third bullet:
They expected to see hospitalized patients with moderate-severed COVID
Reality? Majority of patients *not hospitalized* with wide range of sx. Neurology, pulmonology, and cardiology top referrals.
Example of post-COVID patient:
Symptoms they are seeing at Mt. Sinai post-COVID clinic:
Approach to workup at Mt. Sinai post-COVID center:
What they are seeing with neuroimaging at Mt. Sinai post-COVID center:
They do see white matter changes. Neurologists often don't think much about it. Possible this is from COVID, but may not be –– unless there is an MRI from before COVID, we don't know that there's correlation.
They do see white matter changes. Neurologists often don't think much about it. Possible this is from COVID, but may not be –– unless there is an MRI from before COVID, we don't know that there's correlation.
Looking at cognitive testing –– typical findings in #LongCovid
What could be behind #LongCovid? ( @CDCgov webinar on #LongCovid provider experiences)
Mt. Sinai post-COVID center mentions #dysautonomia #MECFS and small fiber neuropathy
@Dysautonomia @MEActNet
Mt. Sinai post-COVID center mentions #dysautonomia #MECFS and small fiber neuropathy
@Dysautonomia @MEActNet
More about SFN, POTS, MECFS:
There is a lot of overlap between these.
There is a lot of overlap between these.
This provider presenting from Mt. Sinai post-COVID does the following workup:
More on workup.
LP - not doing often unless severe sx.
EMG - will not pick up small fiber neuropathy; need skin biopsy.
Autonomic function - if concerned for POTS.
If resources are limited, treat symptomatically and do focused workup
LP - not doing often unless severe sx.
EMG - will not pick up small fiber neuropathy; need skin biopsy.
Autonomic function - if concerned for POTS.
If resources are limited, treat symptomatically and do focused workup
#LongCovid treatment is symptomatic and supportive.
Note that in the fatigue category, she emphasizes "Do not push to recondition quickly."
Provider comments she's not an MECFS doctor; MECFS can be a whole lecture on it's own. But *please* use caution w/ exercise; *avoid PEM.*
Note that in the fatigue category, she emphasizes "Do not push to recondition quickly."
Provider comments she's not an MECFS doctor; MECFS can be a whole lecture on it's own. But *please* use caution w/ exercise; *avoid PEM.*
In conclusion of Mt. Sinai post-COVID center:
- Neurological symptoms common.
- No meds to cure neurological damage –– treatment is supportive and symptomatic
- Others on slide
Interdisciplinary work is critical here. She mentions #MECFS specialist, rehab folks, etc.
- Neurological symptoms common.
- No meds to cure neurological damage –– treatment is supportive and symptomatic
- Others on slide
Interdisciplinary work is critical here. She mentions #MECFS specialist, rehab folks, etc.
This was a great presentation (& free CME): "Treating Long COVID: Clinician Experience with Post-Acute COVID-19 Care" by @CDCgov
- All slides in PDF form: https://emergency.cdc.gov/coca/ppt/2021/012821_slide.pdf
- Recording of webinar will be up on CDC website in a few hours: https://emergency.cdc.gov/coca/calls/2021/callinfo_012821.asp
- All slides in PDF form: https://emergency.cdc.gov/coca/ppt/2021/012821_slide.pdf
- Recording of webinar will be up on CDC website in a few hours: https://emergency.cdc.gov/coca/calls/2021/callinfo_012821.asp
Multiple times during this presentation, the presenter mentioned that #MECFS requires it's own webinar because there is so much to cover.
If you are a provider looking for additional resources, I encourage looking at the US #MECFS clinical coalition: https://mecfscliniciancoalition.org/
If you are a provider looking for additional resources, I encourage looking at the US #MECFS clinical coalition: https://mecfscliniciancoalition.org/
