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[Exercise]
I don't know who needs to hear this, but if you have a chronic illness like fibromyalgia and your physical therapy exercises make you hurt for days afterwards, and people keep telling you "no pain, no gain"
That's bullshit and you're right to listen to your body
I don't know who needs to hear this, but if you have a chronic illness like fibromyalgia and your physical therapy exercises make you hurt for days afterwards, and people keep telling you "no pain, no gain"
That's bullshit and you're right to listen to your body
[Exercise]
Like yes, exercise can cause muscle soreness even the next day
But I trust you know the difference between "I used this muscle" pain and "hurts so bad it take days to recover" pain
Like yes, exercise can cause muscle soreness even the next day
But I trust you know the difference between "I used this muscle" pain and "hurts so bad it take days to recover" pain
[Exercise]
Anyway, my biggest piece of advice for chronically ill people (and honestly, everyone) is to listen to your body, which may take some practice because capitalism teaches us to ignore our bodies
Anyway, my biggest piece of advice for chronically ill people (and honestly, everyone) is to listen to your body, which may take some practice because capitalism teaches us to ignore our bodies
[Exercise]
If you exercise and feel faint, lightheaded, like your heart is pounding so so hard
You might want to look into POTS and other forms of Dysautonomia
https://www.dinet.org/
If you exercise and feel faint, lightheaded, like your heart is pounding so so hard
You might want to look into POTS and other forms of Dysautonomia
https://www.dinet.org/
[Exercise]
If you exercise and then sometime in the next 48 hours you crash and feel crushing exhaustion, and sometimes it feels like you never get back to the energy you had before the crash
Please look into ME/CFS
https://me-pedia.org/wiki/Portal:Myalgic_Encephalomyelitis
If you exercise and then sometime in the next 48 hours you crash and feel crushing exhaustion, and sometimes it feels like you never get back to the energy you had before the crash
Please look into ME/CFS
https://me-pedia.org/wiki/Portal:Myalgic_Encephalomyelitis
[Exercise]
If you exercise and your face or other skin changes color, you get a rash or hives, you feel a sense of impending doom, or you have allergy like symptoms
Maybe look into MCAS https://www.mastattack.org/mastattack-107-laypersons-guide-understanding-mast-cell-diseases/
If you exercise and your face or other skin changes color, you get a rash or hives, you feel a sense of impending doom, or you have allergy like symptoms
Maybe look into MCAS https://www.mastattack.org/mastattack-107-laypersons-guide-understanding-mast-cell-diseases/
[Exercise]
If you exercise and sometimes you roll your ankle or have Mystery Joint Pain the next day, or your muscles are like hard rocks after you do a thing
Maybe look into EDS and other connective tissue disorders https://www.hypermobility.org/what-are-hypermobility-syndromes
If you exercise and sometimes you roll your ankle or have Mystery Joint Pain the next day, or your muscles are like hard rocks after you do a thing
Maybe look into EDS and other connective tissue disorders https://www.hypermobility.org/what-are-hypermobility-syndromes
This list is by no means comprehensive and is not a substitute for medical advice
Also it's entirely possible to have more than one chronic illness at a time
Also it's entirely possible to have more than one chronic illness at a time
[Exercise]
Also, I'm not saying exercise is universally bad
Just that if it feels like it's making things worse, you might be right, and there may be other, safer ways to exercise that are designed for your body
Also, I'm not saying exercise is universally bad
Just that if it feels like it's making things worse, you might be right, and there may be other, safer ways to exercise that are designed for your body
[exercise]
See also: mitochondrial diseases https://twitter.com/emily_rj/status/1296194326737952768?s=19
See also: mitochondrial diseases https://twitter.com/emily_rj/status/1296194326737952768?s=19
[Exercise]
Also if your PT/doctor doesn't believe that the exercises they prescribed hurt in the not-good way, or doesn't believe that you actually did exercise until it was suddenly awful
That's a systemic problem in medicine, not a you problem
It's ok to switch providers
Also if your PT/doctor doesn't believe that the exercises they prescribed hurt in the not-good way, or doesn't believe that you actually did exercise until it was suddenly awful
That's a systemic problem in medicine, not a you problem
It's ok to switch providers
[Exercise]
For a long time I didn't have words to describe how awful I felt after exercise other than "I feel like I'm dying" which was not a figure of speech
but I think it was so far out of most Dr's lived experience that they thought I was just deconditioned or something
For a long time I didn't have words to describe how awful I felt after exercise other than "I feel like I'm dying" which was not a figure of speech
but I think it was so far out of most Dr's lived experience that they thought I was just deconditioned or something
[Exercise]
Abled people who are all "fake it til you make it" and "just push through the pain" are part of the reason why some of my joints are just permanently messed up
and also make up this internalized ableism chorus that I carry with me and try my best to ignore
Abled people who are all "fake it til you make it" and "just push through the pain" are part of the reason why some of my joints are just permanently messed up
and also make up this internalized ableism chorus that I carry with me and try my best to ignore
[Exercise]
Also wrt "just push through the pain"
When people have told me this, I tend to be upright, dressed, showered, and in a medical appointment
I have chronic pain
How...do they think I got there
The pain doesn't take a vacation?
Also wrt "just push through the pain"
When people have told me this, I tend to be upright, dressed, showered, and in a medical appointment
I have chronic pain
How...do they think I got there
The pain doesn't take a vacation?
[Exercise, ableism]
There is a *big* difference between "I have chronic pain and everything hurts, but this is basically my baseline level of pain" and "my body is screaming stop but I'm going to push through"
Drs & PTs: if you mean the first one, you should clarify
There is a *big* difference between "I have chronic pain and everything hurts, but this is basically my baseline level of pain" and "my body is screaming stop but I'm going to push through"
Drs & PTs: if you mean the first one, you should clarify
[Exercise, ableism]
If you mean to tell patients that we should ignore the signals from our bodies (like that extremely messed up chronic pain 'therapy' that's basically just torture, see link below)
Kindly escort yourself into the center of the sun https://cripplemagazine.com/no-npr-more-pain-is-not-the-answer-for-teens-with-chronic-pain/
If you mean to tell patients that we should ignore the signals from our bodies (like that extremely messed up chronic pain 'therapy' that's basically just torture, see link below)
Kindly escort yourself into the center of the sun https://cripplemagazine.com/no-npr-more-pain-is-not-the-answer-for-teens-with-chronic-pain/
