#MECFS

Thane Black

thane_black

A week ago I voluntarily admitted myself to the hospital to get help bc I am losing weight as a result of increased food intolerances, secondary to my very severe

Daniel Reeders 🏳️‍⚧️

engagedpractx

Academics, please stop using the terminology of mental health if what you mean is stress levels. I recognise this is complex and I'll try to explain it clearly. That discourse

Emily Bazalgette

EmRoseBaz

Journalists! Here's 5 #LongCovid x #MECFS stories that you actually need to write (in contrast to this rubbish in @ObserverUK). Long Covid requires profound change to our healthcare & welfare

Jennifer Brea🦒

jenbrea

This is an excellent article on the role of histamine in exercise. Worth reading for anyone with an interest in #MECFS or #MCAS. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5161583/ .@itsanginLA, a #longCOVID patient, shared the

Dr Homeslice

8Homeslice8

Reasons why, when doctors suggest my #mecfs is anxiety or depression, I firmly disagree. It's not because I deny that anxiety and depression are valid and debilitating conditions. It's not

Dr. Todd Davenport

sunsopeningband

Another . I recall when, early in the #COVID19 pandemic, patients with #MECFS and clinicians/researchers who work with them, warned about #LongCOVID before there was time for cases to develop

Dr Ben Marsh 💙

bendymarsh

To try & understand & manage #LongCovid #postviral condition without including & seeing #MECFS & #LongOtherVirus as likely at least v similiar process is naive & short-sightedWhy would post #COVID_19

Christoph Ströck

cstroeckw

I have very severe me/cfs. There is something I wish I had known as a newly diagnosed moderate patient (years of mild undiagnosed disease before that). One would think it

Dr. Kathryn Brito, PT, DPT

KathrynBrito

@sunsopeningband want to credit you for bringing #MECFS to my attention a few weeks back. I did a deep dive in articles and filed it away in my brain. It

Alison Sbrana

AlisonSbrana

Happening now. Key points:- #LongCovid can happen regardless of acute infection severity- Symptoms: respiratory, fatigue, sleep difficulty, neurological sx, depression, anxiety"There's a lot we still do not understand, and empathy

Jan Choutka

jan_choutka

Holger is a Swedish patient with the severe form of ME/CFS. He now faces the possibility of being forced to a psychiatric ward against his will. Please sign and share

Bea is Chronically Persisting

Be_Kinderr

Does anyone know about immunoabsorption? It sucks IGG antibodies out of blood. In a study of ppl w #MECFS w these antibodies, 7/10 got better or recovered from ME w

Jennifer Brea🦒

jenbrea

If you work on #longCOVID and say “I’m not an #MECFS expert, I don’t know anything about it, it’s not my job to know about ME or ’fatigue’” then you

It'sME(Jaime)

exceedhergrasp1

I've been thinking about #longCOVID and #MEcfs communities and there's only one thing that I feel hasn't been articulated: the recovery/improvement narrative and how carefully-crafted it is by those who

Amy Proal, PhD

microbeminded2

Welp, interested and yet not surprised to be quoted in this article as essentially the sole advocate for the study of persistent infectious contributions to #MECFS and potentially #LongCovid. @moisesvm

Naomi Chainey

GnomesChainey

I am getting quite fed up with doctors or people in medical professions telling people with #MECFS that it is our responsibility to calmly educate *them* on our illness, rather

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