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Brianne Benness
bennessb
I feel like every day there are new reasons for building more precise vocabulary that phases out using visible & invisible as a self-evident disability binary.It means such different things
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[med trauma]Sometimes people talk about internalized ableism in the undiagnosed/recently diagnosed community as if it's a character flaw and not a common side effect of a lifetime of medical neglect
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If you have suspected or confirmed mast cell problems, what have been the most unexpected early warning signs that it's Time To Take A Benadryl*?*or other rescue med, etc I
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Really interesting how many people interpreted this as mindfulness bashing.This was about how I (and many other people) literally do not have the tools to interpret the signals our bodies
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Okay so let's make a symptom glossary.Each tweet in this thread will be for discussing a different symptom family, which I know will get unwieldy.Reply to this tweet with symptoms
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Hi, I don't argue anymore with people who "well, actually..." any tweets about how internet health advice can be more helpful than doctors. Here's why I know, from a
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A weird thing about *not* pursuing diagnosis is how many people are worried you might miss out on a life-altering cure. I'm definitely not saying that there are no helpful
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Let's talk about the advice we give patients about interacting with doctors.You know "become your own best advocate" stuff.Or more importantly, let's talk about the many ways this advice breaks
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This article gets quite a few things wrong, but it's definitely worth talking about the fact that wego health is funded by pharmaceutical companies.I've never received money this way, so
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Just started Lady's Handbook For Her Mysterious Illness (literally, 2%) and I already have chills because of how familiar the invalidating diagnostic saga is & also searing rage because stories
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[food/diet]If you're chronically ill, do you restrict your diet* to help manage your symptoms?*in any way, from following a formal protocol to avoiding your own collection of trigger foods well
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