#Neisvoid

Joanna Spaghetti

joannaspaghetti

CW menstruationOne of the best things I have spent money on as a chronically ill adult is period underwear. I wish period underwear was something I knew about back in

It'sME(Jaime)

exceedhergrasp1

I've been thinking about #longCOVID and #MEcfs communities and there's only one thing that I feel hasn't been articulated: the recovery/improvement narrative and how carefully-crafted it is by those who

Christina Gleason | 🌹🍕🏳️‍🌈✨😘👙

RealKaristina

I didn't expect 253 votes when I launched the poll! While a majority of #disabled people have had 5 or fewer GPs/primary care doctors in their lives, almost a third

margo, undiagnosed

sicc_bitch

hey #DisabilityTwitter! i want you to tell me about your idyllic leftist community/society daydreams.i see lots of anarchist sustainability dreaming about communes and cooperative farming and hand-sewn clothes, and i

Danni Watts

DanniWatts26

For #MeAwarenessHour I have tried to put into words the confusion, fear and isolation I felt before my diagnosis. It took over three months before anyone mentioned the word ME.

Christina Gleason | 🌹🍕🏳️‍🌈✨😘👙

RealKaristina

So I've fired up the laptop. I didn't want to touch it again yesterday after I made it through 21 hours of my 24-hour Twitch stream. I learned a few

hedwyg (Heather R)

hedwyg

I've been reading histories of various diseases - polio, yellow fever, cholera - and so many of them have long forms and/or lifelong "complications." So how is it that long-form

Callie 🏳️‍🌈

chronicallycal

#NEISVoid thoughts:One thing I’ve learned to be mindful of in chronic illness spaces is that different people have different perceptions of the same diagnoses.I know that, for many, fibro was

Autistic Med Student

MedAutistic

Finally had a talk today with the chief resident, who I've been working closely with and who will be writing my evals. Told him I'm autistic, explained my needs. He

✡️ mazel tov cocktail ✡️

shabbosdyke

i haven't seen much discussion of this, so i'd like to start a discussion about cognitive problems in chronic illness. #NEISVoid brain fog is real and terrible, sure, but what

Morgan “Cat Father”

hisnameistama

Not sure if this belongs in #neisvoid but something that I didn’t realize until recently is that I’ve had diagnosed chronic illnesses for most of my life but just refused

Alea Ricklefs

AleaRicklefs

Diagnosis is a privilege. It also takes hard work to get a diagnosis, especially when you have a #RareDisease. It's very common for rare disease patients to wait 10+ years

The Tweedy Mutant ♿🌈

the_tweedy

Please tell me:How many hours of health-/disability-related work do you do in a week?If you were to INVOICE the systems and providers that rely on your sick/disabled labour, how much

E. Krebs🧂

kkrreebbss

I know many folks are struggling with getting things done these days, but I’ve been more productive since the pandemic began than I ever was before it. Why? Academia has

Tain (He/They)

thechroniccurly

Something I’ve always struggled to try to explain to able-bodied friends is the need to “perform” pain to be taken seriously by healthcare workers. So I thought I’d do a

Adam Johnson - DadVocate

RareDiseaseDad

Finding connections & advocating has been so helpful for me. Here’s a thread attempt, w/my limited/developing advocacy skills. Tips/pointers/thoughts from #RareDisease, #chronicillness, #disability, #NEISvoid, #hcldr, #patientchat com

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