#MEawarenessHour

Undercover Autie

UndercoverAutie

This is the state of affairs for people with ME/CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) in the U.K.Our numbers will be rising due to #COVID19 #MEAwarenessHour #MEAwarenessHour #MEAwarenessHour

Michiel Tack

MTackCVS

1) I have made a summary of the draft for the new NICE guideline. It also includes some background info because this could be a historical document for the ME/CFS

Danni Watts

DanniWatts26

For #MeAwarenessHour I have tried to put into words the confusion, fear and isolation I felt before my diagnosis. It took over three months before anyone mentioned the word ME.

Hugh Lewis

ProfHughLewis

For #MEawarenessHour this week I wanted to address something that happens a lot: getting asked how I am. The answers I give are simple & often given to avoid embarrassing

Nicola Jeffery

NicolaCJeffery

Whilst members of parliament like Matt Hancock and Jeremy Hunt praise Simon Wessley today for his #MentalHealthAct reforms for autistic people, can I remind you that this is the same

Ellena Deeley

EllenaDeeley

A medical lesson in the failure to listen to the patient’s voice in CFS/ME: on the need for co-production in CFS/ME (and #LongCovid ) services #meawarenesshour #pwme #MECFS The new

The M.E. you don’t see

TheMEyoudontse1

In regards to #MEawarenesshour there’s a sentiment that’s flown around quite often & I’ve seen more of it recently so I’d like to give my 2 cents(In true ME/CFS fashion

Hannah Davis 🦈

ahandvanish

One of the most jarring and upsetting things I've learned as part of this #longcovid journey is the entire world of post-viral and post-infectious illness. One of these, a neuroimmune

Mary-Jane Kohler 🌊

TruthAbout_ME2

I wish that #pwME would be more aware of how their words could affect #Covid #longhaulers. Many Covid patients are getting close to the 6 month mark & are taking

Jan Choutka

jan_choutka

As days get shorter, evenings longer, and the world in turmoil due to a pandemic, let me tell a sad and forgotten story. A tale of the early outbreaks of

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