I wish that #pwME would be more aware of how their words could affect #Covid #longhaulers. Many Covid patients are getting close to the 6 month mark & are taking in a lot of information. While nothing magical happens at 6 months, it could be an emotional milestone for some.

1/

I'm concerned about exaggerated or erroneous posts or posts that express black-and-white thinking that #pwME make about #MECFS. Covid patients need facts, not emotional or exaggerated statements. Some things I've seen:

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1. During meawarenesshour a #pwME said that if you have #MECFS you're either going to have severe diarrhea or constipation. I had a conversation with the poster about this since this is not true!

2. There was a derogatory statement from a Canadian #pwME ...

3/

... about ALL psychiatrists and psychologists. I wish I would have said "Not all of them are bad, in fact I've met some great ones. I think any individual's experience of any specialist is going to vary a lot."

3. Another #pwME said that #MECFS would not be diagnosed ...

4/

... before puberty. I said I knew this was not true.

4. A #pwME was so insistent that a Covid patient had ME that she was eventually blocked when she wouldn't back off.

Please think about what you're writing and ask yourself if it's really true or is it an exaggeration?

5/

How harmful is your statement if it is wrong but a longhauler takes your word for it? Are you just sh*tposting?

Stepping off my soapbox now

I welcome any discussion.

6/end