#MCAS

Sparrow/Liz (semi-hiatus)

UntoNuggan

[food]Next time you have the impulse to say something like "if you're immunocompromised why are you even going out to the store?"please remember that many disabled people literally can't afford

Ellison Cooper

ECooperAuthor

I haven’t discussed this publicly, but a lot of folks have been asking about my next book so I figured it was time for an update. The short answer is

Eric Dodson

EricWayneDodson

I got up early and caught a bus from Miramar to Camp Pendleton. I checked my box lunch to see what kind of sandwich the chow hall had packed for

Jennifer Brea🦒

jenbrea

My husband and I both got sick with what we think was #COVID19 in late March. It took us each 2.5 months for our symptoms to completely resolve. It may

Jennifer Brea🦒

jenbrea

Folks concerned about my advocacy for structural, neurological diagnoses, for #MCAS and connective tissue disorders, or for "#MEspine"––I really do want to understand what is at the heart of this.

Jennifer Brea🦒

jenbrea

Petra Klinge’s talk on tethered cord syndrome blew my mind. It‘s given me a deeper understanding of how tethered cord syndrome might play a fundamental role in the patholophysiology and

Sparrow/Liz (semi-hiatus)

UntoNuggan

Life with an underdiagnosed condition is just "wait, that's not supposed to hurt?" over and over until you diehttps://twitter.com/UntoNuggan/status/1289186444985040897 [Menstruation]Additional potentially life-changing PSA:Yes

Jennifer Brea🦒

jenbrea

We should take some of the most replicated findings in #MECFS and study them in #longCOVID patients. Some of these findings, if also present in #longCOVID, *could* potentially imply avenues

Roberto A. Jiménez Rivera

hashtagRoberto

Alright alright...it's Friday evening and I'm angry at DESE, so it's time for GIF snark that may or may not make sense. Some of these may make no sense, but...here

TheDisabilityEnthusiast

twitchyspoonie

Let me tell you about the main symptom of the chronic illness covid often gives people. It's called Post-Exertional Neuroimmune Exhaustion/Post-Exertional Malaise and it's like quicksand. It means the more

skye

stimmyskye

medicinal plants and plant medicines collection thread that I'll be expanding. feel free to add your own experiences and additional info.my focus is improving my MCAS & EDS, i.e. nausea,

square root of -1

myopiabillson

So I've been making changes to my diet - small ones, bc I'm not the best with big or quick changes. A big part of me will just be like,

Jessica Diamond ♿ She/her

JessicaXDiamond

Thread on ableism in vegan communities. I asked the other day if people would be interested in this, and the answer was a resounding yes. I'd like to make some

Eng Monda Makori Dickson

mondamakori

How To Build A House Cheaply In Kenya THREADIn Kenya, building a house cost an arm and a leg. It is important, however, to note that the cost may vary

Sparrow/Liz (semi-hiatus)

UntoNuggan

[Exercise]I don't know who needs to hear this, but if you have a chronic illness like fibromyalgia and your physical therapy exercises make you hurt for days afterwards, and people

Walter M Chesnut

Parsifaler

1) RETWEET!!!!!! THE SPIKE PROTEIN OF SARS-CoV-2 IS A "SUPERALLERGEN"!!!!!!! WE ARE "ALLERGIC" TO IT!!!The curious case of MIS-C brings an important concept to mind. Children that present with MIS-C,

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