I'm going to try and be more visible with my chronic pain from AS.

I'm not looking for sympathy or even well-wishes, I just want to be vocal and open about what I'm going through because I know so many others are, too.

Unfortunately, my body is a fucking wreck right now.

On a GOOD day I'm uncomfortable or in mild pain every moment of the day. On a good day I only wake up *a few times* in the middle of the night.

I think it's hard for people to comprehend, especially people who interact with me. I'm aware of my AS every. single. waking. moment.

Right now I'm in the middle of weeks and weeks of BAD days.

On bad days, my body is in Pain for every moment I'm awake.

On bad days, I wake up from sleep more times than I can count and my head is a cloudy mess for most of the day.

On bad days, it's really all-consuming.

I'm trying. I have ideas and treatment options and lifestyle changes to try to see what sticks.

But it sucks. It hurts. It impacts me and interferes with all the cool creative stuff I want to do. But I'm trying and I'm not giving up.

And if you're here too, know I'm with you.