Great @newrepublic piece on #LongCovid & #MECFS context, but let's be cautious praising UK's response to Long Covid. Yes, our centralised system excels at rapid infrastructure. We can quickly create Nightingale hospitals & LC treatment centres. But... 1/ https://newrepublic.com/article/161102/covid-19-long-haulers-chronic-disease-health-care
The Forever Disease: How Covid-19 Became a Chronic Condition

Thousands of people have been suffering a slew of crazy post-infection syndromes for months—and there’s no end in sight.

https://newrepublic.com/article/161102/covid-19-long-haulers-chronic-disease-health-care
... What we can't do overnight is create doctors who believe #chronicillness patients. 33% - 50% of GPs do not believe that ME/CFS exists (there are 250,000+ #pwme in the UK). Our medical system is primed to dismiss complex, chronically ill LC patients 2/ https://twitter.com/ManeeshJuneja/status/1351995903725490178
We can't overnight reform a UK medical system that, in cahoots with our welfare system, has an absurd romance with the biopsychosocial model of illness, which leads to the @bmj_latest publishing embarrassing things like this 3/ https://blogs.bmj.com/bmj/2021/01/25/paul-garner-on-his-recovery-from-long-covid/
Paul Garner: on his recovery from long covid - The BMJ

We need to listen to communities of people who have recovered from illness, says Paul Garner       I loved my job, had good friends, and felt as high as a [...]More...

https://blogs.bmj.com/bmj/2021/01/25/paul-garner-on-his-recovery-from-long-covid/
Also, just because a centre exists, does not mean it's actually helping people. 20 years ago, a network of clinics was set up to treat ME/CFS. This was my experience 👇🏻 and I know lots of #LongCovid patients are able to access the LC clinics yet 4. https://twitter.com/EmRoseBaz/status/1197101720993697792
*are not able to access the LC clinics yet
See also: empty Nightingale hospitals because existing hospitals don't want to send staff there. A building or physical space does not mean you've created a service. The existence of a LC treatment centre does not mean that patients are being treated https://www.theguardian.com/world/2021/feb/01/doctors-question-if-london-nightingale-hospital-was-best-way-to-treat-covid
Doctors question if London Nightingale hospital was best way to treat Covid

Report defends creation of facility but suggests complexity of virus led to issues

https://www.theguardian.com/world/2021/feb/01/doctors-question-if-london-nightingale-hospital-was-best-way-to-treat-covid
You can follow @EmRoseBaz.
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