Thread by @soozibags, Its the first day of Kidney Cancer Awareness Week #KCAW2021For day 1 [...]

Sooz

soozibags

Its the first day of Kidney Cancer Awareness Week #KCAW2021

For day 1 I thought I'd share an insight into a typical day for me living with this disease.

#Kidney #Cancer #Awareness #KidneyCancerUk @kidneycanceruk

1/9

After getting up the first thing I do is take medication. This morning that's 2 chemotherapy tablets and 3 tablets to manage side effects (of which there are many... more on that another day!)

2/9

After getting up the first thing I do is take medication. This morning that's 2 chemotherapy tablets and 3 tablets to manage side effects (of which there are many... more on that another day!)2/9

This is my current drug stash. #Narcos

On the left are the drugs keeping my cancer from growing. On the right are drugs to manage the side effects.

3/9

This is my current drug stash. #NarcosOn the left are the drugs keeping my cancer from growing. On the right are drugs to manage the side effects.3/9

I then have to wait half an hour before I can have breakfast and a cup of tea. I also check my blood pressure* for the first time today (its slightly raised, but not too bad).

*raised blood pressure is one of the treatment side effects

4/9

Off to the office next, which for the past 46 weeks has been the spare bedroom. Because my treatment affects my immune response I'm extremely vulnerable to Covid-19 and have been #shielding since March.

Thank goodness for stable WiFi and Google Meet

5/9

Off to the office next, which for the past 46 weeks has been the spare bedroom. Because my treatment affects my immune response I'm extremely vulnerable to Covid-19 and have been #shielding since March.Thank goodness for stable WiFi and Google Meet 5/9

Oh, hello random unexplained bruise on my knuckles!

This is a probably a sign that my platelet count is low. It may mean I need a treatment break and/or a dose reduction. I'll find out at my 6 weekly check up next week.

#myelosuppression

6/9

Oh, hello random unexplained bruise on my knuckles! This is a probably a sign that my platelet count is low. It may mean I need a treatment break and/or a dose reduction. I'll find out at my 6 weekly check up next week. #myelosuppression6/9

Lunchtime means another blood pressure check and completing the daily covid-19 survey.

Answering this question is interesting seeing as I haven't felt physically normal since 2018...

7/9

Lunchtime means another blood pressure check and completing the daily covid-19 survey. Answering this question is interesting seeing as I haven't felt physically normal since 2018... 7/9

Finished work for the day and I'd LOVE to just have a nap on the sofa. But I know how important it is to keep active, so its time for a resistance training session.

TAKE THAT CANCER RELATED FATIGUE

8/9

Finished work for the day and I'd LOVE to just have a nap on the sofa. But I know how important it is to keep active, so its time for a resistance training session. TAKE THAT CANCER RELATED FATIGUE 8/9

Now all that's left is dinner, more tablets, another blood pressure check, some trashy TV and then bed (probably by 9pm!) before doing it all again tomorrow.

Thanks for joining me and let me know if there's anything you'd like me to talk about tomorrow!

9/9

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