Read on Twitter
My body is no longer compatible w/the grueling & unrelenting pace of American life. I ran myself ragged. How are we are going to bounce back as a nation with COVID leaving so many chronically ill? I’m taking it a day at a time, because I can’t imagine living like this forever. 1/
Last week, I had 2 dr. appointments, went to the tire shop & to a wholesale grocery store. I hadn’t done that much in a year. I went to sleep & I didn’t wake up for 4 days except to go to the bathroom. Didn’t eat or drink, didn’t change clothes, nothing. My body checked out. 2/
I feel like I have a brain injury. Noise & light together is unbearable. I have horrific brain fog/headaches again, which I haven’t experienced for the last 6mos or so. My body feels like it was hit by a truck. I’m walking into walls, dizzy, my body hurts & I have no strength. 3/
I’m seeing the rheumatologist next week but I’m not hopeful. I’ve been living like this for an entire year. No one can tell me why. No one knows what the next year will bring. No one knows anything about the long-term effects of this virus. We could all die in 5yrs, who knows? 4/
It’s really hard for me to watch everyone “move on” while millions of Americans continue getting infected and no one cares. DYING IS THE EASY WAY OUT, FOLKS. We aren’t talking about the living hell that awaits survivors, especially those who never had positive Covid tests. 5/
I went from living a very active life of sailing, yoga, running 5-7 miles a day—I was the picture of health in Nov 2019—I got sick Feb of 2020, & now I’ve been an invalid for a year. Since I never had a positive COVID test, they won’t consider COVID-related issues. 6/
Mine was a textbook case, but it was too early & there was no testing at the time. As such, I’m continually told there’s nothing wrong even though I’ve lost 50 lbs, am covered in tumors + lymphadenopathy, have a cornucopia of symptoms & I can’t get out of bed. It’s MADDENING. 7/
I personally think I have MECFS or some post-viral fatigue syndrome + a connective tissue disorder. It would also explain the head/neck tumors. I’m hypermobile too, & that seems to be a risk factor of sorts. WHATEVER it is, this is no way to live, & there are millions like me. 8/
There is simply no way to “move on,” because this virus has taken a wrecking ball to my life. I’m a single parent, & I have no idea how I will be able to raise & support my kids from bed. Not having a diagnosis means people constantly question the validity of my symptoms. 9/
I am exhausted. I do not know if I will survive this. We cannot ignore the plight of the survivors. People are dropping dead from Covid-related health problems many months after having COVID. It wrecks your body & it keeps wrecking it long after “recovery.” Please take care! 10/
