I'm hoping you can all help me, I am blessed to call some amazing student and junior Doctors, my friends and they've asked me to help them prepare a Case Study for discussion around #invisibleillness #chronicpain and #EhlersDanlosSyndrome....
A patient presents to an ED/A&E in significant unmanageable widespread pain and 'other complaints'. The Medics run bloods and imaging which all comes back as normal. At this point, the Consultant states there's nothing wrong, medically fit, go home...
From a patient perspective, what would we like our care to be like? What could Dr's do differently? What language needs to change? How can we ensure validation of our symptoms? If someone has an EDS diag already, what non-pharmalogical approaches should they advocate?
@TheEDSociety @ehlersdanlosuk @BluesteinLinda @HMSACharity @thecsp @NHSEngland @NHSuk

THANK YOU ❤️
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