I want things to be SO MUCH BETTER for long Covid folks than they have been for ME patients. I truly am thrilled at the research funding allocated to long Covid. Sure, I wish it had been spent on us too, but things need to change, to get better. Let it start now. 1/
So, my ME friends, if you feel bitterness arise when you see long Covid patients treated better than we have, be gentle with yourself. It's natural. But then celebrate: Change is happening! It's good in itself, and it'll help us too. 2/
May long Covid patients not be gaslit! May treatments be found for them quickly! May they not lose their lives as we have! May their friends and families stick by them! May their caretakers get the support they need! May they have all good things -- and may we have them too. 3/3