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THREAD: Women and "Unexplained" Diseases
It's interesting that even a condition as common as #Migraine is still not well understood.
Significant overlap with many other conditions mostly impacting women that are also "not well understood" is present.
https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(16)30293-9/fulltext https://twitter.com/ErinSandersNP/status/1349743162525409287
It's interesting that even a condition as common as #Migraine is still not well understood.
Significant overlap with many other conditions mostly impacting women that are also "not well understood" is present.
https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(16)30293-9/fulltext https://twitter.com/ErinSandersNP/status/1349743162525409287
2/ As a women’s health clinician & #COVID researcher I know ME/CFS, #LongCOVID & most autoimmune diseases disproportionately impact women after puberty. Female preponderance has likely contributed to the historical neglect of funding & subsequent lack of interest in studying them
3/ Paradoxically, the ongoing dismissal of many of women’s symptoms and abuse by the medical system is a direct result of our lack of understanding & ongoing LACK of funding.
cc: @jenbrea @ahandvanish @AthenaAkrami @Dr2NisreenAlwan @MBVanElzakker https://twitter.com/jenbrea/status/1349843697563648000?s=20
cc: @jenbrea @ahandvanish @AthenaAkrami @Dr2NisreenAlwan @MBVanElzakker https://twitter.com/jenbrea/status/1349843697563648000?s=20
4/ This pattern of ignorance/lack of understanding and dismissal, further perpetuates the trauma women suffering from chronic illness must endure. @ahandvanish @AthenaAkrami @jenbrea @RanaAwdish @VirusesImmunity @angie_rasmussen
Example stats ME/CFS: https://twitter.com/jenbrea/status/1348807011173949442?s=20
Example stats ME/CFS: https://twitter.com/jenbrea/status/1348807011173949442?s=20
5/ Or Functional Neurologic Disorder (FND) aka Conversion Disorder, Hysteria, or Psychogenic Non-Epileptic Seizures (PNES).
Majority of patients with PNES are women, outnumbering men by a ratio of 3:1. Female sex preponderance occurs after puberty & usually before the age of 55
Majority of patients with PNES are women, outnumbering men by a ratio of 3:1. Female sex preponderance occurs after puberty & usually before the age of 55
6/ You don't have to look far. Patient's are SMART. Many patients are also clinicians and scientists.
Lack of data does not equal lack of EXISTENCE of a problem, it equals lack of UNDERSTANDING of the problem.
And this problem is immense. https://twitter.com/DrJessTaylor/status/1349431339641139202?s=20
Lack of data does not equal lack of EXISTENCE of a problem, it equals lack of UNDERSTANDING of the problem.
And this problem is immense. https://twitter.com/DrJessTaylor/status/1349431339641139202?s=20
7/ The intersection of sex hormones and immunobiology has never been more important for us to understand.
My optimistic hope is that the enormous amounts of funding for #COVID19 open doors to understanding pathophysiology of previously neglected diseases particularly in women.
My optimistic hope is that the enormous amounts of funding for #COVID19 open doors to understanding pathophysiology of previously neglected diseases particularly in women.
8/ Paternalism, sexism & racism are baked into medicine, medical training, and a broken healthcare system.
But our scientific ignorance should not be wielded to blame & further abuse patients.
Our lack of understanding is not their failure but ours. https://twitter.com/GinaMcGalliard/status/1348814876563681281?s=20
But our scientific ignorance should not be wielded to blame & further abuse patients.
Our lack of understanding is not their failure but ours. https://twitter.com/GinaMcGalliard/status/1348814876563681281?s=20
9/ And while we're at it, could we just abandon certain medical terms like: "incompetent cervix" and "irritable uterus"...
There are more specific, more scientific, and less offensive terminology we can use for women's bodies.
@VirusesImmunity @angie_rasmussen @DocElovitz
There are more specific, more scientific, and less offensive terminology we can use for women's bodies.
@VirusesImmunity @angie_rasmussen @DocElovitz
10/ @threadreaderapp please unroll
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