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#LongCOVID fam: it took me many conversations with patient #pwme to understand that ME is a full-body systemic illness.
"Chronic fatigue syndrome" was named by a dude who later apologized for the name's triviality. ME/CFS is as severe as LC & needs to be thought of as such. 1/ https://twitter.com/jenbrea/status/1349773752549064704
"Chronic fatigue syndrome" was named by a dude who later apologized for the name's triviality. ME/CFS is as severe as LC & needs to be thought of as such. 1/ https://twitter.com/jenbrea/status/1349773752549064704
His apology:
2/
2/
Check out these symptom lists for ME from 1990 and 2001 - they look familiar...
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3/
I understand that particularly in the UK, where it seems to be taken even less seriously, it's a scary diagnosis to get because it equals being dismissed/not getting care/being forcibly committed. But we need to be working together to fight that instead of being scared. 4/
#pwme have been dismissed for years & distancing ourselves from them is not the right thing to do, doubly so when our illnesses are so similar. 5/
