I have just learnt that a long covid group in the UK including drs have said publicly that this is not “just” post viral MECFS. There is a real pathology to be explored. How fucking dare they! I am furious! Who are they and has anyone challenged them? I am beyond insulted!!!

I am really sick to the back of my teeth of people distancing themselves from MECFS. If you don’t have organ damage and you experience PEM, you have ME just like everybody else who got it from varying infections!!!! It’s ignorant, arrogant and damn right nasty to claim otherwise

It is nasty to distance yourself from a disease simply because you don’t want to have a stigmatising label! Because you want to have something that is more important! Long Covid is not more important than people suffering for decades with exactly the same thing! Livid!!!!

And newsflash! We have real pathology that needs to be tested and explored!!! To make the above comment is to suggest that MECFS is just in patients’ heads and doesn’t warrant the same testing and treatment. Condemning patients to suffering. It’s disgusting beyond words!!!!!!

@BBCFergusWalsh @BBCHughPym @TimesONeill @mermhart @BBCRosAtkins @BBCSangita @DrTedros @edyong209

MECFS is something that happens to people following a stressor. Usually a pathogen. So I really don’t give a flying crap what virus causes it, it is all the same. All of it is some type of post viral disease and currently it is called ME! IT IS NOT A NOVEL, SEPARATE ILLNESS!!!

https://twitter.com/remediespodcast/status/1349721767028420608