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What people seem to be missing around #ndis #independentAssessments is that you won’t be ABLE to appeal or fight funding decisions. Appeals against NDIS decisions have spiked, a 700% increase since 2016. But IA’s won’t be regarded as an NDIS ‘decision’ so they are not appealable.
2/ In your twenty minutes with a stranger in your home, as @NicRogerson recently experienced, you’re going to be allocated a bunch of money that you can’t argue about. I bet Nicole’s family member has a decent outcome because when we shouty advocates shout, it’s fixed.
3/ But Nicole, like myself and @holliejhughes, have autistic sons. They are not shouty parents fighting for their kids rights. When we are gone, we want Jake, Jack & Fred to be okay.
If their plan isn’t okay, we need a mechanism to make it okay. This IA plan is not a good idea.
If their plan isn’t okay, we need a mechanism to make it okay. This IA plan is not a good idea.
4/ I have muscular dystrophy and I did my ndis plan mid last year. I am in the country, 11kms from a train station. I spent almost two hours with two women from the NDIA and APM in my planning meeting. I’m a wheelchair user, autistic, with ADHD. I took a support person.
5/ I over prepared. Without going into detail about what was wrong in my plan, they had somehow misinterpreted my clear ‘I have no way to get to the train, there’s no public transport to town and no footpaths, I need support to get to the train, I don’t drive.’ How?
6/ This is what they wrote. That my family would provide informal support by encouraging me to learn public transport. That I would benefit by doing (unfunded) ‘public transport training’.
I’m a 53 year old mother of six. None of my kids live with me. They are adults.
I’m a 53 year old mother of six. None of my kids live with me. They are adults.
7/ It was fixed rapidly, without having to appeal, because I have a public profile. But you know what? I’m still a disabled person and parent. Writing this, I wonder if I will be punished for speaking out. That’s the hold they have over us. They can decide whether we stay in bed.
8/ They have the power to decide if our tampons are changed or our continence aids. If we can get more than two showers a week. They have the power to decide if we see our families or if we can go to the shop to get food.
Would you speak up? How many do?
Would you speak up? How many do?
9/ It’s only a few percent who go to court, who have the resources to do so. Many just don’t. I suspect many exit the scheme or die and are not counted.
But now they want to take that away, our right to appeal a decision.
It’s wrong.
But now they want to take that away, our right to appeal a decision.
It’s wrong.
10/ I think the thing that distresses me the most is that this reducing, capping and narrowing of the ndis is the crushing of a great Australian dream. You know, it wasn’t just a Labor or @billshortenmp dream. It was a bipartisan dream, supported by all our parties.
11/ It was designed to lift us up out of poverty, help us have the same opportunities as other Australians. Help us have the same rights and dignity as other Australians.
But now they’re proposing this. And if you’re not worried, you’re not looking hard enough.
Fight this thing.
But now they’re proposing this. And if you’re not worried, you’re not looking hard enough.
Fight this thing.
