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THREAD: Yesterday we launched #COVIDComplexity, highlighting the experiences of over 150 people with neurodevelopmental conditions, families and carers during the #COVID19 pandemic.
The full briefing is at http://bit.ly/2XzvqRW , or read on for a summary: (1/8)
The full briefing is at http://bit.ly/2XzvqRW , or read on for a summary: (1/8)
Our survey opened in September, against the backdrop of a wider "back to normal" narrative.
Yet in almost every area of life we asked about, the majority of people with NDCs, families and carers said there had been no change as restrictions had eased. (2/8)
Yet in almost every area of life we asked about, the majority of people with NDCs, families and carers said there had been no change as restrictions had eased. (2/8)
The major exception to this was education - of those negatively impacted by school closures in March, more than half said that re-opening had made a positive difference to their lives. (3/8)
Changes have affected different people in different ways - even for people with the same conditions.
Some people with NDCs have faced great difficulties in lockdown, others have thrived - but most have experienced a combination of negative and positive changes. (4/8)
Some people with NDCs have faced great difficulties in lockdown, others have thrived - but most have experienced a combination of negative and positive changes. (4/8)
Some people with NDCs have been able to work, study, and use appointments more effectively by joining remotely.
The post-pandemic world must continue to support this, as well as reinstating face-to-face services for those who rely on them when it is safe to do so. (5/8)
The post-pandemic world must continue to support this, as well as reinstating face-to-face services for those who rely on them when it is safe to do so. (5/8)
Many people with NDCs struggle to make phone calls, write e-mails and/or use video technology - cutting off access to support.
During and after the pandemic, services should offer a range of options for getting in touch, and information about those options, from the start. (6/8)
During and after the pandemic, services should offer a range of options for getting in touch, and information about those options, from the start. (6/8)
People can't follow rules they don't understand.
Guidance to prevent the spread of #COVID19 should be clear, concrete, and available in accessible formats. It should relate to the everyday lives of people with NDCs - including those in supported living and care settings. (7/8)
Guidance to prevent the spread of #COVID19 should be clear, concrete, and available in accessible formats. It should relate to the everyday lives of people with NDCs - including those in supported living and care settings. (7/8)
The rising mental health difficulties facing people with NDCs will not disappear after the pandemic.
Even before #COVID19, too many struggled to get the right support. Now, mental health services should ensure they can offer accessible, appropriate care in the long term. (8/8)
Even before #COVID19, too many struggled to get the right support. Now, mental health services should ensure they can offer accessible, appropriate care in the long term. (8/8)
