1/4 Excellent paper highlighting the many assumptions currently made around #longcovid (eg the unfounded suggested definitions ‘post-acute’ and ‘chronic’), the plausibly underestimated prevalence that’s currently commonly quoted, https://twitter.com/trishgreenhalgh/status/1340969846272606208

2/4 identifies that many were never hospitalised, and notes the importance of including the patient experience in service creation. Also demonstrates the disbelief patients were faced with, and the severity of LC.

3/4 “Perhaps the most important contribution of this study is to have identified a mismatch between what the peer-reviewed scientific literature is saying about persistent symptoms and what patients are actually experiencing.”

4/4 “long Covid is perhaps novel in including relatively large numbers of clinicians and scientists” ... “It is time to collaborate with these groups to take forward a genuinely patient-centred research agenda.”

@fmwales @vaughangething @BorisJohnson @WelshGovernment @WGHealthandCare @LeeDavidBowen @Doctor_IMF @jakesuett @ClareRayner6 @_2000shazza @LongCOVIDPhysio @LongNetherlands @LongCovidSOS @LongCovidWales @long_covid @collea39 @sasperillaz @Sarah15974