Today is my zebra day 🦓🎉 is my 2 year anniversary of getting a diagnosis and yes that is something I celebrate!

Why? Because getting a diagnosis was life changing.

You see: An illness start before getting a diagnosis. A diagnosis doesn't mean you get sick, it means validation
And after all the ableism which most of it I even internalised, it was life changing to hear that I was indeed sick and not making it up, or that I was exaggerating or faking or being lazy or that it was my own fault or that I was a horrible person. No. I was sick.
Some people think I talk too much about my illness. But I'm not going to stop. There are several reasons for that.

1: in my 2 years with a diagnosis there are at least 3 people that now have an official diagnosis because after years of searching they recognized themselves in me
2. Disability plays a huge role in my life. I take it with me whereever I go, which is not many places because it is impacting my life so much that I hardly leave my house. Even when there is not a pandemic. It changes my life, it changed my identity, it changed me.
I want to be able to talk about me. That is something everyone needs. And talking about me means that I talk about disability. It's like when you talk about work. I am more than my disability but the two are so much intertwined that being disabled is a huge part of my identity.
3. People think that I'm negative because I talk about disability so much. But I'm not. Like I said, for me it's just talking about myself. Not more positive or negative than talking about work. It's sharing life experiences, a part of myself.
I'm proud of myself and my disability is a huge part of me. And yes being disabled is hard and it sucks many times. But it's part of me. If you think I can't celebrate me for who I am then that is a you problem.
If you think talking about disability is negative and disabled people are negative for sharing their experiences, you need to check your ableism. It means you have negative feelings about disability and that is making you uncomfortable. It's all your problem. Not mine.
Time to celebrate my zebra day 🦓🎉

#NEISVoid
You can follow @WritingZebra.
Tip: mention @twtextapp on a Twitter thread with the keyword “unroll” to get a link to it.

Latest Threads Unrolled:

By continuing to use the site, you are consenting to the use of cookies as explained in our Cookie Policy to improve your experience.