Read on Twitter
Phew! That was some fast and furious live-tweeting from me for the last hour at #UKSF20 on the aphasia panel. I'm sure there will be some typos. I'll now try to highlight questions for the panel and the answers.
Q for @MyzoonAli - when looking at datasets where ppl didn't get SLT, how did you manage ethical issues? Myzoon answers, due to secondary data analysis, it wasn't an issue for the RELEASE team.
Q for @MyzoonAli can you point us to a paper on the RELEASE data? Yes - just recently accepted in Stroke journal so keep a look out for this in early 2021. I certainly will.
Q for @MyzoonAli did you look at types of therapy that were most useful? And the dose? And their impact on the language domains? Answer: Yes, this is a separate analysis and will hopefully be published in 2021.
Q for @MyzoonAli How did you capture the datasets from so many countries? A: Identified datasets systematically - published and unpublished and via @CATs_Aphasia network.
Q for @ReaDySpeech What years does the SNNAP(iest) data look at? A: 2013-2015 - takes a long time to go through the data and write the analysis.
Q for @ReaDySpeech Does the 10 mins of SLT a day include weekends? A: Yes. This was analysed by a statistician so the fairest way was to divide to include weekend working across services. That's a really useful question, thanks to whoever asked.
Q for @ReaDySpeech were you able to see who had concomitant swallowing problems? A: The study was bound by what was available on SSNAP audit. Can only use the data that was there so there were limitations.
Q for @ReaDySpeech Are people looking at aphasia first or dysarthria? Or combining? A: Can't say from this data but Claire asks when she presents this data - what takes priority? Ppl feel there's more research in aphasia so they feel more confident addressing this.
@ReaDySpeech sites Cochrane reviews for aphasia (with many studies) https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD000425.pub4/full versus dysarthria (with very few) https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD002088.pub3/full
Q for @ReaDySpeech What happened to the people in your study? What were the outcomes for communication? A: It's not possible to know but Claire would like to find out more.
@MadelineCruice the @LUNA_Aphasia team want to look more at discourse training and education. This is ongoing work and future focus. Keep an eye on the LUNA blog (linked previously).
Q for @KaterinaHilari How did you recruit the peer befrienders (chronic aphasia)? Did they have experience of depression/low mood? A: Recruited from the community (SLTs and support organisations) who suggested people. Criteria set by advisory group w aphasia - not based on mood.
Q for @KaterinaHilari How can we access befrienders for patients in community? A: SLTs were familiar with these people - who would make a good befriender, ppl who had made progress and were well-adjusted to new identity.
Q for @KaterinaHilari is there a plan for a larger national study for SUPERB? A: Next stage is a definitive trial involving multiple sites across the country but details not finalised. Need to consider online befriending methods (ran a small pilot of this on Zoom w pos. findings)
@KaterinaHilari findings from the befriending programme on Zoom - less stress for befrienders relating to travel, better levels of energy, noticed things on Zoom and chatted about them (i.e. background). Online befriending might be a useful route forward.
Q for @MadelineCruice Tell us about training in discourse. A: This will be available via the @_CityAccess portal https://cityaccess.org/ And stay up to date via the blog: https://blogs.city.ac.uk/luna/
