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Having a PhD stipend of min. wage, with no sick leave or support is a set-up that many disabled folks could never support. The cost of health alone destroys that budget.
It should never have taken a pandemic to show that we don’t need to be in the office to do our work.
9-5pm is a construct for ableds that is hardly productive for most. I operate best on sporadic hours during health respite. I get the work done - but not to an archaic timeline set in the 1800s
Ethics applications ask for plain language statements, but RARELY grant them themselves. The intensity of those applications is a barrier unto their own
Responses via phone are possible within hours, responses via email (for Deaf/HoH) take “up to 14 days” to respond.
The casualisation of the labour, and it’s companion of job insecurity is a huge stress, adding to the mental health burden.
Most universities operate in an open plan system - one repeatedly shown by research to be the worst for productivity. Add neurodivergence on top and you have a nightmare.
The celebration of being “busy” or overworking is ableist, unhealthy and outdated.
One researcher once told me “I’m always wary of people with condition researching it. It’s best they leave it to others” - suggesting lived experience would cloud their judgement as oppose to bring a richness to it.
What else would you add? I feel like I’m barely scratching the surface
