Read on Twitter
hey uh if you have chronic pain and you feel like the pain is not so bad as long as you sit very still in a nest of pillows with your heating pad, as long as you don't move or cough or laugh or whatever
I regret to inform you that your pain may, in fact, be pretty heckin awful
I regret to inform you that your pain may, in fact, be pretty heckin awful
Like it's your body so I don't want to be like "I know what a bad pain flare feels like more than you do"
But I've had this type of pain where I just have to stay really still and not breathe too deep
And uh, it's generally been seriously bad
But I've had this type of pain where I just have to stay really still and not breathe too deep
And uh, it's generally been seriously bad
[Body horror, period edition]
Like I had this type of pain during adenomyosis flares, which is when my uterine lining grows inside the muscle of my uterine wall and tried to uh do that period thing, except there was nowhere for the blood to go?
Like I had this type of pain during adenomyosis flares, which is when my uterine lining grows inside the muscle of my uterine wall and tried to uh do that period thing, except there was nowhere for the blood to go?
[Body horror]
I've also had this type of pain due to my brain literally sagging out of the back of my skull, and my brain stem kinda being squeezed
I've also had this type of pain due to my brain literally sagging out of the back of my skull, and my brain stem kinda being squeezed
[body horror]
Also I've had this type of pain lately with intracranial hypertension, where there's too much cerebrospinal fluid in my brain and it's putting pressure on my optic nerve etc
Also I've had this type of pain lately with intracranial hypertension, where there's too much cerebrospinal fluid in my brain and it's putting pressure on my optic nerve etc
[medical BS]
In both of these cases, I experienced some medical professionals who tried to tell me that my pain was "not that bad"
And I almost believed them? Because I was already so worn down and it wasn't so bad if I just stayed very very still
In both of these cases, I experienced some medical professionals who tried to tell me that my pain was "not that bad"
And I almost believed them? Because I was already so worn down and it wasn't so bad if I just stayed very very still
Fortunately I had crip friends and loved ones who knew how much I was actually struggling, who validated that my pain actually was Very Bad
So if you need a crip friend for this, too: I believe you that your pain is very bad, and you deserve actual help
So if you need a crip friend for this, too: I believe you that your pain is very bad, and you deserve actual help
I don't know what help looks like for you, maybe it's surgery or a medication or medical cannabis or actually having a wheelchair so you're not trying to walk on your shredded connective tissue
But I believe you when you say that the pain is very very bad
But I believe you when you say that the pain is very very bad
[uterine BS]
If you have very bad periods and are tired of being told "it's just bad cramps", I have a thread for you https://twitter.com/UntoNuggan/status/1294409685660049409?s=19
If you have very bad periods and are tired of being told "it's just bad cramps", I have a thread for you https://twitter.com/UntoNuggan/status/1294409685660049409?s=19
If you have a connective tissue disorder like EDS, and also really bad headaches that don't respond to any of the migraine treatments, you might want to just glance at this list and see if anything seems familiar https://www.ehlers-danlos.com/2017-eds-classification-non-experts/neurological-spinal-manifestations-ehlers-danlos-syndromes/
If it does seem familiar, there's a FB group called Beyond the Measure which can help if you want to figure out how to see a specialist
I also wrote this post specifically about my suspected craniocervical instability https://liminalnest.wordpress.com/2020/03/06/ways-to-cope-when-you-have-suspected-cci-aai/
I also wrote this post specifically about my suspected craniocervical instability https://liminalnest.wordpress.com/2020/03/06/ways-to-cope-when-you-have-suspected-cci-aai/
If your pain is some kind of medical mystery and you can't tell which (if any) medical terms apply to your experiences, you might want to check out this symptom glossary thread from @bennessb https://twitter.com/bennessb/status/1235237886297092097?s=19
If you've got a connective tissue disorder and have a lot of hip/sacro-iliac pain, here is a post for you https://liminalnest.wordpress.com/2019/07/19/so-your-hips-are-hurting-and-you-are-maybe-hypermobile/amp/
