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Quick #SpoonieTip.
If you never have your food/drink at the intended temperature?
You may need more help with your meals.
If you never have your food/drink at the intended temperature?
You may need more help with your meals.
I have discovered today that I'm not simply *forgetting* to eat my food after I prepare it!
I am first too #fatigued.
I ultimately decided to recover & reheat the food.
I am first too #fatigued.
I ultimately decided to recover & reheat the food.
But I've been forgetting that the fatigue is what makes me unable to eat food I heat sometimes.
Because by this step I usually have #BrainFog instead of Strawberry cough.
Because by this step I usually have #BrainFog instead of Strawberry cough.
Yesterday though, I felt princessy (do not ask me) and lazy and # 3 wasn't coming when I called out loud, on the phone and via a sister.
I made him heat my dinner. Which backfired as he loved it.
I wasn't fatigued so I ate immediately.
That made me aittle more a fatigued but not as much as making it then getting up twice to reheat it.
I wasn't fatigued so I ate immediately.
That made me aittle more a fatigued but not as much as making it then getting up twice to reheat it.
Writing it down it is super obvious.
But you know how it is if your disability came in stages or has flares.
But you know how it is if your disability came in stages or has flares.
Your brain collects a bunch of tasks called "having dinner"
and when you decide that's what you're doing
your mind calls up that list.
and when you decide that's what you're doing
your mind calls up that list.
You might be so used to the world refusing to work for you
that you don't even think of "having dinner" as a system.
Let alone one that can be tweaked or fixed.
that you don't even think of "having dinner" as a system.
Let alone one that can be tweaked or fixed.
I was. And I didn't bother to fix it because I didn't even SEE the problem.
How would having
someone else
coming from another room
to get my tenderloins
from my fridge
to put them in
my microwave
help, if I was going to forget to eat anyway?
someone else
coming from another room
to get my tenderloins
from my fridge
to put them in
my microwave
help, if I was going to forget to eat anyway?
And the scary question underneath, why did I *deserve* that much looking after?
This is what ableism does by the way. I have my own screwed up self worth issues of course.
But they weren't deep enough for me not to think I deserved FOOD, prior to internalized ableism surfacing.
But they weren't deep enough for me not to think I deserved FOOD, prior to internalized ableism surfacing.
Anyway.
In case your problem with not getting your tea when it's hot or your ice cream when it’s cold has persisted for reasons unknown, and you have willing helpers?
Talk to them.
In case your problem with not getting your tea when it's hot or your ice cream when it’s cold has persisted for reasons unknown, and you have willing helpers?
Talk to them.
The other day someone said something like “what if what makes it hard for you to ask for help isn’t pride, it’s trauma.”
And I’ve been talking out my daily-mini-traumas all day...
And I’ve been talking out my daily-mini-traumas all day...
