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I had symptoms related to the brainstem and upper cervical spinal cord: Weakness of arms and legs, clonus, problems with coordination of arms, legs and eyes, nausea, my breathing stopped at night and my heart and blood pressure were misregulated. Doctors said #ItsInYourHead https://twitter.com/MizTeeFranklin/status/1323380195441713155
I lost my ability to work and my job. It took years to be diagnosed with incomplete tetraplegia as a result of occipitoatlantoaxial instability & subaxial cervical instability, and Ehlers-Danlos syndrome as the underlying cause.
Bias #ItsInYourHead delayed diagnoses.
Bias #ItsInYourHead delayed diagnoses.
I am thankful I survived, on my own, at home, after doctors sent me home because they thought of my brainstem-related symptoms #ItsInYourHead
It has resulted in permanent incomplete tetraplegia, and I've been traumatized by how doctors and HCPs treated me.
It has resulted in permanent incomplete tetraplegia, and I've been traumatized by how doctors and HCPs treated me.
The harm done by the assumption #ItsInYourHead desperately needs more research.
It harms patients physically, psychologically, socially, financially. It creates and perpetuates epistemic injustice.
This assumption is unethical. Please listen to and believe patients.
It harms patients physically, psychologically, socially, financially. It creates and perpetuates epistemic injustice.
This assumption is unethical. Please listen to and believe patients.
