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It is international PBC day on Sunday and this is a disease I have been living with for three years. What is PBC? It’s an autoimmune disease of the liver which has absolutely nothing to do with alcohol btw. I want people to be aware of it because I was diagnosed after jaundice.
Drs thought I had gallstones after what you could call a gut feeling by my ANP to check my liver function via blood tests. I was asymptomatic mainly but little did I know everything would just come out: the worse itchiness I’ve ever experienced and constantly fatigued.
I was told to go to rapid assessment at hospital and that meant Drs had 48hrs to diagnose the issue. 3 ultrasounds found no gallstones, my bloods were sent away to specialists. Around two weeks later, I was told I have PBC and was immediately given treatment of ursodeoxycholic
acid. I met my excellent Professor a few months later and things had improved. By December 2018, I had dipped and had no choice but to get a biopsy and I’m now grateful that I did because I’m on better treatment and it’s going well. If it wasn’t for @PBCFoundation, I would not
know half as much as I do. It is a disease that I don’t wish upon anyone and I was 35 at diagnosis. More women than men get it, the ratio is 9 women to every man. It’s a rare disease, but ladies and gentlemen, please be aware that this can happen to anyone.
I’m always grateful for my Professor and his team for looking after me, our NHS is really amazing 
