There's been a wave of good pieces on COVID-19 long-haulers in the last few weeks. Here's @tanyabasu in MIT Tech Review on the Body Politic group that organized to research themselves. 1/ https://www.technologyreview.com/2020/08/12/1006602/covid-19-long-haulers-are-organizing-online-to-study-themselves/
At Buzzfeed, @bri_sacks wrote about the group's recent call with the WHO, as part of their continued efforts to get recognition. 2/ https://www.buzzfeednews.com/article/briannasacks/covid-long-haulers-who-coronavirus
This one's mine, on how the long-haulers have changed their own landscape over the last couple of months.
I love that all these stories portray the group as protagonists of their own stories, and not victims without agency. 3/ https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/
I love that all these stories portray the group as protagonists of their own stories, and not victims without agency. 3/ https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/
I hope more stories come out. And as they do, this @fi_lowenstein piece on how to ethically and sensitively report on people who have very little energy to spare will be increasingly important. /Fin https://www.cjr.org/covering_the_pandemic/how-to-cover-covid-19-patients-sensitively.php