#RightsCon #livetweet
What are the challenges of building a #datacommons & what should be done on the policy front to encourage it?Questions before the strategy session on 'Data building blocks for #digitalcommons' @rightscon
@CommonFutrs
@FCC_UK
@mydataorg
@PrivacyCDN
Toronto waterfront dvpt by Sidewalk Labs, involving high tech urban space proposed civic #data trust which replicates the fundamental challenge of #digital commons. It’s a variation of dark patterns notice & consent. This is not commons but appropriation, @PrivacyCDN @mydataorg
#DataCommons initiatives can work if there is an appropriate framework for data governance with data as an economic resource. But no framework currently exist which allows communities to lay stake to their data, Nandini Chami @ITforChange
How do you say that, as a participant in the community, I have a stake in the economic value being generated, this is the question to fix, and this cannot be fixed without talking about #datagovernance, Nandini Chami @ITforChange
UK govt issued directive on how to access publicly-funded & controlled health data. We come across cos saying if you give us data for free, we will give you the product. But this gives cos access to the whole NHS mkt - this is a is a business benefit, Annemarie Naylor @FCC_UK
The pushback, in the NHS example, benefits one party and not all, Annemarie Naylor @FCC_UK
We often talk about #datacommons / #datatrust as a single thing. But we need to have a choice of data trusts rather than have one single data trust which undermines a person’s autonomy, @PrivacyCDN @mydataorg
Need to build trust on health data usage; people need to see discernible benefits of pooling health data. When it comes to vulnerabilities, we need to build trust based on protection, Annemarie Naylor/ @FCC_UK
some resources from IT for Change on the subject of data commons:
This paper attempts to develop a theoretical basis for asserting community ownership over much of data -- the concept of community data.
https://itforchange.net/sites/default/files/1673/Data-commons.pdf
This policy brief, a joint effort by IT for Change with @DataGovNetwork examines the current non-governance of aggregate non-personal data and proposes concrete strategies to develop a framework law for protecting and sharing this common resource.
http://datagovernance.org/files/research/Policy_Brief_02.pdf
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