Inspiring sessions at the #EndPJParalysis global summit so far this morning! Great to see so much focus on empowering older people https://twitter.com/BrianwDolan/status/1281124702744915968

Great point re. the 1% & benefit of of marginal gains & powerful point about risk ownership to not wrap older people in cotton wool - it is as much about changing culture/attitudes as the infrastructure in A.Warters' talk about creating a movement about movement #EndPJParalysis

Inspiring session from @BritishRedCross about partnership working & importance of agility in challenging times. Great story about supporting housebound isolating older people to have their hearing aid serviced so they're not without their hearing thr. the pandemic #EndPJParalysis

Another lovely e.g. - birthdays! @BritishRedCross used stock of Easter eggs & linked with local school for children of keyworkers to make birthday cards for isolated people. Huge emotional boost & great way to flip the service to benefit the community #EndPJParalysis

Great points from @EmergMedCons & @BrianwDolan It is not just about being safe for discharge but whether they safe for admission! Very important to know what the patient wants #EndPJParalysis

Great talk on adapting use of technology in practice to support people with @KateHughesOT & @OTGlasgow. Pilot passports, family involvement in virtual sessions & innovative reflective sessions to support staff #EndPJParalysis

Resonated with everything in @DrLizaMorton session on their studies around the hospital gown experience. Change is so needed for #patientexperience Psychologically informed medicine shows us the importance of feeling safe to prevent trauma & build resilience #EndPJParalysis

Time for a movement break! Everyone up on their feet for #500miles - old favourite at @RVSCumbria community classes! Great example to set during the #EndPJParalysis summit Thanks @BrianwDolan @LyndamHolt!

Caught the last 5mins of the session on frailty at end of life and the mental and physical deconditioning of people with Covid-19 & I'm so excited to watch the recording NW! Fantastic to see such energy & passion for change and experience of care #EndPJparalysis

Jumping back into the #EndPJParalysis summit with a session from @FABSJULIE @moveitorloseit1 about enabling people to live longer better. Proud to have delivered 100s of these seated exercise classes through @RoyalVolService partnership - benefits are clear time & time again!

#moveitorloseit has an excellent focus on what is important to each individual with every exercise tied to functional fitness so that we can help people to meet their own goals. Loving that the cuppa routine is now a greetings card! #EndPJParalysis

@moveitorloseit1 Interesting point about masks and peripheral vision with regards to an increased falls risk, particularly for people who have been inside for the last few months. Great video from Karen to support and prepare people to get out & about #EndPJparalysis

83 people still online at the #EndPJParalysis summit for "A letter from ICU", the lived experience of working in ICU during the Covid pandemic from @dr_mattmorgan. Excited for this having read #Critical!

Powerful to hear from frontline staff @dr_mattmorgan - fantastic speaker who distills a huge topic into something we can all connect with. Staff wellbeing has never been more crucial #EndPJParalysis

Great emphasis that ICU is more than working the machines, it is also about supporting people and their families at the end of peoples' lives. Crucially, great communication through all of it. Thank you @dr_mattmorgan for sharing your words and videos with #EndPJParalysis

Such a powerful statement from @AlisonSchofie10 on deconditioning as she shares her son's story - "kindness can cause damage" #EndPJParalysis

@AlisonSchofie10 sharing the importance of being honest with patients about risks of PJ paralysis so they can make an informed decision & own their risk. What is important to them? Culture change needed to shift away from 'doing for' while in hospital #EndPJParalysis

Time for another movement break on the #EndPJParalysis global summit Another @RVSCumbria community class classic on the soundtrack with "these boots are made for walkin'" - can I remember the routine after all these months?! #moveitorloseit

Time for @LyndamHolt's session on rekindling innate #compassion that I've been excited for all day #EndPJParalysis

Beautiful imagery from @LyndamHolt of the dance between fear and compassion & compassion as a being to being connection because compassion is deep rooted in our brains and bodies #EndPJParalysis

@LyndamHolt Compassion makes us drop our masks and gives us permission to be vulnerable in order to be resilient. It's ok not to be ok. It's ok to hope. It's ok to plan for a better future & take lessons from this time that will make a positive change #EndPJParalysis

Thought-provoking tour of compassionate leadership from @LyndamHolt, 4 steps:
1. Paying attention - Who are you? Are you living your values? What about others?
2. Understanding - put the focus on others & how we can make it better
#EndPJParalysis

3. Empathising - not just about feeling someone's pain but connecting with it. Often people just want to be heard, not problem-solved
4. Helping - do what is needed & have the courage to admit when you can't
Compassion benefits us all, let's use it! #EndPJParalysis

Perfect quote choice from @LyndamHolt about compassion "No kind action ever stops within itself" (Amelia Earhart) #compassion #EndPJParalysis

Inspiring session from Judeline Nicholas on navigating inequalities in health with courage! Love the term "upstander" to oppose bystanders, to see injustice & act on it to help create a healthier place for everyone #EndPJParalysis

Reflecting about going through life on autopilot following a fantastically, simple exercise using colours written down in a mix of other colours. Read the words. Then read the text colour. Will be practising to shift that focus #EndPJParalysis

We must ask ourselves questions to move through across the board. This attitude can be applied to all injustices! Do I listen? Who do I surround myself with? Do I go out of my way? #EndPJParalysis

Very important point surrounding taking care of ourselves through the work we undertake. All day I've added to my list of what i want to do & help with but we must put our own oxygen mask on first! #EndPJParalysis

My key takeaways from @GeraldineR16 are the importance of speaking simply & clearly, recognising potential of all staff & knowing the people in your care. Hoping for nationwide uptake of Significant7 in care homes to benefit residents & staff #personcentredcare #EndPJParalysis

Eye-opening session hearing from the Albertan team about pivoting through the pandemic with fast, innovative work - particularly concerning the different covid experience of people living with disabilities. How easy is it to take hand washing for granted.... #EndPJParalysis

Beautiful message from @LyndamHolt to everyone at the #EndPJParalysis global summit: You. Make. A. Difference. Something we all need to remember at times! (Anyone still reading this thread should know they make a difference too! )

Fantastic day on #EndPJParalysis summit, just passed hour 15 but couldn't resist staying to hear @LyndamHolt & @BrianwDolan talk about doing no harm & frailty not being inevitable before signing off for the night - "Now is the time to invest in our future selves"

Day 2! Always inspiring listening to @BrianwDolan talking about time being the most important currency in health & social care. If it was your last 1000 days, how many of them would you choose to spend in hospital? #EndPJparalysis

"Harm is frequently caused by time ill spent" - it is time to reflect on how we spend time @BrianwDolan #EndPJparalysis

Fascinating point about beds not being capacity - build it and they will come. Time is capacity. How do you spend your day? Look at patterns & value added. What overlap is there with other people? Think like a patient, do I understand what or why is happening? #EndPJparalysis

Vital point on battlefield metaphors in healthcare. Patients are not battlefields. If they don't react or if they die, they're brave. But no illness considers morality. If people react, are they not brave? Should they die? Huge impact on experience of illness! #EndPJparalysis

The existential threat of Covid-19 means the last 1000 days is not abstract or only applicable to others now. It could be about us #EndPJparalysis

Striking impact of reframing terminology... "falls prevention" can become "safer mobility", "cleaners" -> "Patient Safety Associates" and "reducing LOS" -> "Giving patients back time" So empowering to staff and patients #EndPJparalysis

Reflecting on sentiment of "social millionaires" being created by healthcare after @BrianwDolan talk on time. Acts of kindness that value patient time & offer dignity mean we can never underestimate how much we matter. You are enough! Never be afraid to say it #EndPJparalysis

LOVE this piece shared by @BrianwDolan in his session on time. It is so important & a privilege to see the person within the older body. What is the story of their tattoos or their outfit? What music might they have enjoyed as a young person? #rockandroll #EndPJparalysis

Such an engaging session with @RoyLilley! Particularly struck by his story of 600K patient miles saved within a Trust through Covid-19. It has to be time to reflect on attitudes to &respect of patient time and lives #EndPJparalysis

Incredible talk from @yvonnecoghill1 on race equality in NHS. We need to stop talking. We don't need any more evidence. It is time to choose to take action. We assume leaders speak for all of us - they need to truly speak for ALL of us #EndPJparalysis

Beautiful exchange between @LyndamHolt & @yvonnecoghill1 - We need to have courage, get over our fears of making a mistake & get out of our own way so that we can stand up and be true allies. Must be ready to say I'm sorry, challenge assumptions & ask questions #EndPJParalysis

Powerful talk on "Life, death & love in the time of Covid-19" - @silv24 shared her experience of cognitive dissonance & the absurd contrast between the scenes in & out of the hospital. We must be kind, compassionate & work to connect with each other now! #EndPJparalysis

Beautiful point from @silv24 about the impact on healthcare staff of having a sense of the person they are caring for, humanising each person in ICU. Huge benefits of this understanding for patients but lots to reflect on about staff experience of connecting #EndPJparalysis

Movement break! Heads, shoulders, knees and toes #EndPJparalysis

Profound discussion about respecting our Elders going forward - deconditioning, home first, power of choice, advocacy, importance of language, loneliness, risk ownership, #myfutureolderself & more! #PersonBeforePatient Lots more to see, join in! #EndPJparalysis

Fascinating to hear about the creation of @GB1NHS, journey to the GN1NHS call sign & the amazing reach that shortwave radio can have from @DevlinPJ - brilliantly optimising communication to support platforms such as #EndPJparalysis #GetOnTheAirToCare #GOTA2C

Inspiring session from @WhoseShoes about breaking down barriers through storytelling so we can walk in the shoes of people who are struggling. "Stay, so safe" poem should be on every wall on ward as we think about risk and #expofcare "but what if the TV blows up?" #EndPJParalysis

Amazing examples of partnership b'n NHS, Fire service & WI in Warwickshire @rawbubbles9: mobility support, home from hospital, scrubs, food & more! Incredible community support where it is needed... many hands really do lighten the load! #EndPJParalysis

Love the story shared of firemen delivering exercise videos in a bid to engage people - I can think of many past and present class participants who would enjoy exercises delivered by firemen in uniform! Do you agree @AnneRedfern?? #EndPJParalysis

Interesting model used in Argentina to record mobility alongside BP, HR etc. in hospital to promote mobility & visualise progress! Striking end quote of "health without muscle mass & mobility is not health, it is survival" #EndPJparalysis

Beautiful and emotive session from @RuthOshikanlu around "pregnancy & mamahood without fear"! Thoroughly enjoyed hearing about support available at this vulnerable time & loved the links made between the first and last 1000 days #EndPJparalysis

Fascinating session on post-viral conditions w emphasis that they are so much more than fatigue - catch up on this after the #EndPJparalysis summit as it may affect many in weeks to come! So important to listen to your body, pace yourself & be kind & patient with yourself

If your story creates your future - what story do you need to tell? One of possibility & hope that empowers you & invites people to engage with you. What is your bigger mission? What value adding? Why is it important? Powerful session with @LyndamHolt, thank you! #EndPJparalysis

"If we want to help people move from a place of fear, we have to craft stories that help them engage and tell them why it's important" @LyndamHolt #EndPJparalysis

"Craft your stories around the difference you make to create the health world you want to be a part of" @LyndamHolt #EndPJparalysis

Ask what you want to be, not what you want to change. Reflect, find a time you have done it (even once) = evidence it is possible. Pay attention to every moment you do it again. Each time, you reassure your brain & turn a conscious process into an unconscious one #EndPJparalysis

Fantastic penultimate presentation by @HealthPhysio on deconditioning in the time of Covid-19 & looking at #PVF, #PVFS & #ME. Physical acticity is good & accessible to most but there is no one size fits all approach - sometimes a rest prescription is needed! #EndPJparalysis

What a fantastic 36 hours with the #EndPJparalysis global summit! So much to think about going forward. Closing session live now with @LyndamHolt & @BrianwDolan for reveal of over 1 million Twitter impressions & 300K+ reach! Highly recommend catching up on recorded sessions!

Inspiring reflections on ownership of change in the closing statement #EndPJparalysis: It grows one heart, one mind, one conversation at a time. It's about creating a compelling enough vision for people to be involved in, stepping up & back to create ownership - not to own it..

... but to enable people to champion the parts they can make a difference to! It's about emotional & cultural ownership, not only structural ownership. People are generous with their ideas when given the chance & each idea can spark another and another #EndPJparalysis

"We can all own part of the solution" @LyndamHolt #EndPJparalysis

We want to give people control & choice to engage with their own story & goals #EndPJparalysis

"Choose what you own" Covid has let us connect with hope & compassion amongst the chaos & despair. @LyndamHolt calls us to put down what burdens us & choose to carry what will help us make the impact we want to make in the world #EndPJparalysis

Excited to follow the Movement Movement going forward through podcasts! You can join the #EndPJparalysis campaign here:
http:/endpjparalysis.org/join

Energised and inspired by the last 36 hours to champion this wonderful campaign in whatever comes next in my work and volunteering journey #EndPJparalysis