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Not gonna let technical difficulties stop me from commenting on @1a w/ @labelleverite & @judithheumann about #ADA30!! Here are the comments I wanted to share
#CripTheVote #1a #ADA #DisabilityRights #COVID19
#CripTheVote #1a #ADA #DisabilityRights #COVID19
Eugenics & ableism is a HUGE issue.
In Texas, a Black disabled man named Michael Hickson died 6 days after doctors withdrew nutrition and hydration because he had the coronavirus and his doctor
In Texas, a Black disabled man named Michael Hickson died 6 days after doctors withdrew nutrition and hydration because he had the coronavirus and his doctor
didn’t believe he had enough quality of life and this is a very real fear disabled have with the medical industrial complex, that we’re not seen as we really are or valued.
You cannot conflate disability with poor health or quality of life.
You cannot conflate disability with poor health or quality of life.
It simply isn’t accurate and as states deal with hospitals at or over capacity, some have crisis standards of care that straight up discriminate against disabled people either deprioritizing their care or outright excluding them from care.
Just a few days ago on June 26th the Office of Civil rights announced a resolution to a federal complaint against the state of Tennessee by a group of disability rights organizations. The state agreed to revise their healthcare rationing guidelines to comply with laws like the
ADA so that they do not discriminate and deny care to disabled people in Tennessee. And that’s a big deal and hopefully other states will notice.
The state of Arizona, a state experiencing a sharp increase in infections, released an addendum to their triage protocols which place older and disabled people in a lower priority for care because of their estimated life expectancy and these SOFA
( Sequential Organ Failure Assessment) scores are actually not meant for triage or predictor of survival.
The attitudes that our lives are not worth living requires more than just legislation and advocacy, it requires a culture shift and systemic change.
The attitudes that our lives are not worth living requires more than just legislation and advocacy, it requires a culture shift and systemic change.
Popular culture contributes to these assumptions with the kinds of representation we see everyday. Films like Me Before You or Million Dollar Baby send messages that living with significant disabilities is a fate worth than death and you see this show up in policies and
practices such as the standards of care or the legalization of physician-assisted suicide.
On future work ahead for disability rights:
I’d like to see an abolition of all congregant settings such as prisons, detention centers, nursing homes,
On future work ahead for disability rights:
I’d like to see an abolition of all congregant settings such as prisons, detention centers, nursing homes,
and other long term care and psychiatric facilities. They are death traps that segregate people and make them invisible. The systems that exist are broken and cannot be reformed by more money or better trained staff. We can create better ways of caring for one another.
Political and civic participation: we need to make sure all people have the opportunities to get involved and create change in a variety of ways, not just public service. In the future I want to see disabled people in every field and in every room where it happens.
I also want to see disabled people receive whatever they need that allows them to be fully integrated and engaged with society. That’s the dream for me.
FYI: All the guests on the show are using an app and we're supposed to hold the phone to our ear. Since I can't hold a phone up for an hour because of my disability, I'm using earbuds. When I tested earlier w/ the studio they said I sounded fine. Real bummer!! Yay Twitter!
