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Thank you @thetimes for putting a spotlight on families suffering unimaginable situations when their children are dealing with ME.
We take issue with the spokeswoman for the Royal College of Paediatrics and Child.. /1 https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt
We take issue with the spokeswoman for the Royal College of Paediatrics and Child.. /1 https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt
The quote “It can be difficult for parents and children because graded exercise is difficult and can even be painful, especially at first” displays an absolute lack of understanding about the physiology of ME and the potential harm for the children involved @thetimes /2
Ignoring the issues with GET and ME, any exercise programme that causes pain should be immediately reviewed. Forcing anyone, let alone a child, to continue with a painful treatment and threatening to report to child services if not carried out, is simply incomprehensible./3
We would like @thetimes to continue their exploration of ME, and suggest they use the resources in our website http://www.physiosforme.com to find exercise physiologists and researchers who can give a better explanation of the issues around GET
We have a page specifically aimed at parents of children with ME here https://www.physiosforme.com/resources-for-parents
