I'd thought about writing a long meandering thread on what its like to live with, care for and, well, love someone with a chronic illness, but then I thought better of it because, who wants to hear any of that stuff anyway. So instead I'll tell you about our little trip today...1
Mrs P. has MS. She was first diagnosed around 13 years ago. A couple of years later that diagnosis was 'upgraded' to Secondary Progressive MS. In simple terms that means no periods of remission. In other words 'it' as we call it is always there, doing something...2
On a good day 'something' can mean mild pain, a little cognitive dysfunction, a touch of fatigue maybe. On a bad day? Well, they're bad days. Mrs P's most frequent reminder from 'it' is fatigue; that's not feeling 'a bit tired', it's like having the life sucked out of you...
She can't do anything. No, seriously, she can't do ANYTHING đŸ˜„ It's a bastard. Anyway, what's that got to do with today? Well, 'it' has been a tough few days (see above) but today, things were a little better, so we went out, down to Port Meadow in Oxford. Its good to get out...
Even if only to sit in the sun, by a river & maybe try & walk a little. So we walked a little, then rested a little, then walked a little, then rested a little...you get the idea... So, in the end its been a GOOD day 🙂 The good days matter because not every day is a good day...
So we take every opportunity to make the most of the good days and, I really have ended up writing a meandering thread so, sorry about that. 😉 Here are some photos to cheer you all up!
So we take every opportunity to make the most of the good days and, I really have ended up writing a meandering thread so, sorry about that. Here are some photos to cheer you all up!
So we take every opportunity to make the most of the good days and, I really have ended up writing a meandering thread so, sorry about that. Here are some photos to cheer you all up!
So we take every opportunity to make the most of the good days and, I really have ended up writing a meandering thread so, sorry about that. Here are some photos to cheer you all up!
So we take every opportunity to make the most of the good days and, I really have ended up writing a meandering thread so, sorry about that. Here are some photos to cheer you all up!
PS: I'm in soooo much trouble when Mrs P. spots this thread 😂
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