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#MyalgicE
#MEAction Network UK
MEActNetUK
Excellent to see ME highlighted on the front page of @guardian today, alongside other disabled people left off vaccine priority lists. People who have been house and bedbound for years
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Tom Kindlon
TomKindlon
New: “Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria” (July 27) by Prof Brian Hugheshttps://thesciencebit.net/2020/07/27/post-covid-syndrome-myalgic-encephalomyelitis-and-the-recurring-p
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Tom Kindlon
TomKindlon
Press Release from NICE about its new draft #MECFS guidelines that are out for consultationhttps://www.meresearch.org.uk/nice-guideline-update-press-release/“The draft guideline also highlights the importance of ensuring that people remai
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Tom Kindlon
TomKindlon
[Thread]“Re: Management of post-acute #covid19 in primary care - A warning to #PostCovid sufferers and their clinicians” by @ozfish (who has #MEcfs for 30 years)https://www.bmj.com/content/370/bmj.m3026/rr-7#LongCovid #LongHaulers #Scep
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Nicola Jeffery
NicolaCJeffery
Whilst members of parliament like Matt Hancock and Jeremy Hunt praise Simon Wessley today for his #MentalHealthAct reforms for autistic people, can I remind you that this is the same
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#MEAction Network UK
MEActNetUK
#MEAction UK has written a letter of complaint to Good Morning Britain @GMB We are deeply concerned by recent statements by Dr Hilary Jones on GMByesterday in his interviewwith Kate
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Tom Kindlon
TomKindlon
[Thread]PD White has just co-authored a #MECFS paper which has a dubious, wishy-washy recovery definition: not a complete remission of symptoms & a return to premorbid functioning" but where basically
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Tom Kindlon
TomKindlon
[Thread]Nice, thoughtful article“Pandemic social isolation provides glimpse into the everyday realities of #chronicallyill patients: The COVID-19 pandemic is teaching the world a lesson in empathy for those who have had
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Tapanui 'Flu ('Tui Tapanui')
TapanuiFlu
1/25 I would like to deconstruct one of the persistent myths about #MyalgicE, because I'm seeing a recurring theme where quite a few #pwme are making sweeping statements on Twitter,
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